Kaiya Ayotte, a 10-year-old from Durham, Conn., has found new ways to connect with her younger brother Henson, who has autism, through the newly formed Sibshops program at Southern Connecticut State University’s College of Health and Human Services.
Led by Assistant Professor of Communication Disorders Zara Waldman DeLuca, Sibshops offers a supportive environment at monthly meetings for siblings of children with disabilities. They provide activities and discussions to help siblings understand and bond with their disabled brothers and sisters.
DeLuca is also one of the co-leaders for CT Sibling for adults to create a continuum of support for siblings across the state.
“The relationship between someone and their sibling, regardless of disability, is often the oldest and longest connection they will have,” DeLuca explained.
Sibshops were developed in the late 1980s by Don Meyer, the director of the Sibling Support Project, to address a gap in support services for siblings of children with disabilities.
While resources for parents and children with special needs were expanding, siblings were often overlooked, despite the crucial role they play in family dynamics. Recognizing the unique challenges faced by siblings, Meyer created Sibshops as a playful yet educational setting where siblings could connect, share experiences, and gain support.
“Sibshops give siblings a chance to share their experiences and see that they’re not alone. It’s about building connections and positive memories,” said DeLuca. “Growing up with a sibling who has special needs can bring complex emotions, but with the right support, siblings can feel empowered and more connected.”
